It's been awhile...again. I say that A LOT! It's just so busy and this isn't the place I think of, but I think of it while I'm driving. Oh, I need to write this or that down. And by the time I get a chance it's gone!
So, Cole is still wrestling. As long as he finishes the season his coach told him he already has enough points to get a varsity letter. I'm SO excited for him. This means that even if he has his heart surgery and never get the chance again he'll still get to be like the other boys. I told him if his grades stay up even after wrestling and the beginning of next year we will get him a letter jacket before Christmas. I know this is a big expense for us, but I will find a way to do it for him because he rarely gets some of life's luxuries other kids get. I want to spoil him just once.
Jaemin had his occupational therapy evaluation and she agrees that he seems to have sensory disorder. He won't qualify for help through the school unless he has a deficit somewhere else and he does in speech, so they've tested him there too. Poor guy has had two days in a row of testing and questions...mom too. The speech therapist said she'll finish up everything sometime next month. The OT thought there was a good chance they could squeak him in on speech and get him qualified for OT that way. It's the first time I was validated by any professional and I was so happy. So she taught me a brushing technique that we can try with him to alert his senses and the theory is that he will eventually not have to stim (stimulate) himself through flapping, running, etc. to soothe his senses. Neurologically normal kids wouldn't care for it because it can sort of hurt, but he likes it. It feels good. We just started it yesterday, so it's hard to say. Probably just coincidence, but for the first time he didn't get upset when I wasn't home at bedtime and he went to bed for Brian before I came home from Cole's match. He slept all night in his bed without even trying to come in my room. Hopefully, eventually we'll see differences. Someone I know said her daughter was in therapy for a couple of years and she saw drastic changes. The OT thinks he will most definitely benefit and she said she was happy I pushed for the last 1 1/2 years to get someone to take me seriously. He's such a smart boy. He's just stuck inside himself sometimes because he can't quite get it out with what all's going on. The quieter, sometimes the harder it can be for him.
Nothin' new for the other 3. I had a $100 reward check from a policy I have, so instead of saving it this time I decided to splurge and we took some of it and went out to eat....on a week night. The kids (or us for that matter) never get to do something this...ever. It was a nice change. We just talked and had fun.
Had a talk with Cole last night to make sure he knew how proud I was of him. Not because I think sports are important but because he was brave enough to try something he'd never done, not knowing how he'd do and really stuck it out there. I told him he's the toughest boy on the team and I mean that. How many kids are lining up for their next heart surgery and do this? I can't wait to see him more and more because he gets better at each one. Win or lose you can see a difference.
I can't believe it's almost Christmas. I'm a little sad because it will be SO different. I'm not sure I've ever spent a Christmas Day without my family...(mom, sister, etc.). But, it was canceled because it's usually at mom's and she and M decided to fly to New York to see B and E. I'd have gone if I didn't have a little boy that's fairly dependent on me. B deserves to have family too and in his situation he can't just fly back. It's a compromise for everyone and family does that when they care. We're going to make the best of it though. I've bought enough junk food to make us sick. We're going to (all 7 of us) play games that we get for Christmas and watch the Christmas movies I've been taping all day long. We can eat wings, jalapeno poppers, little smokies and my must have cheesecake. Oh and Kaelin requested fruit salad, so that's the only thing I have to really make. I'm hoping we'll all have a good time just being together. That's always good for a family, though we are probably together more than most, nowadays.
All is good for the most part and I'm just excited for the kids to have their Christmas now. We don't buy anything for each other, so we can spend it on them, but I don't care. I LOVE watching them open their presents. They're the best kids in the world and really do appreciate the small things in life.
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