Stinkin' allergies and sinus...I try to work

I don't know what I do different on the weekends that make my nose swell up the way it does.  Can't breath.  I finally got myself breathing better this morning and then it was just so nice out I had to get some things done.  I get moaning and groaning if I ask the boys to do the leaf blowing, so I just do it.  I fixed all our big rocks in the gravel area between our two driveways...something that had to be done after the driveways were poured.  Then since I needed to blow the leaves out of there anyways it was time to blow off the front of the house too.  There were so many leaves from fall and winter that you could have jumped off the raised porch into the pile.  I didn't want to tempt the kids.  The thought of all that leaf dust just makes me ill.  I blew it to the other side of the house, so hopefully it won't blow back.

They finished our deck this week and while it's much, much smaller than I had planned...not my decision....Brian's quick decision while they were working on it and we won't go there.  It's much sturdier than our old deck and looks nice.  When the weather gets warm in the spring we'll seal it so it doesn't wear as hard as the old deck.  The stairs are so nice....they don't shake the whole thing when you walk down them.  We had so much vinyl rail left from the old deck that we used some of it to make a little handrail for our new concrete steps.  I would so manage to fall if it's not there.  Like Brian said, this is the best the house has ever looked.  He put some siding up where we took the deck down and put mortar in the holes on the brick from the old deck.  You can't even tell it ever existed. 

Now I can enjoy spring when it comes.  But, for tonight, I will be paying for all that leaf blowing.  Kaelin (who's got a little cold) and I are a symphony of snuffs, coughs and heavy breathing.  It's very lovely.

Another appt, hopefully

Another year.

Cole had his annual cardiology appt....the usual....EKG and echo.  Doc said that his heart function looked good.  Since he sees us in a satellite office some years he doesn't have his full records with him.  So he said when he got back he'd check last years and compare size of his right ventricle to this year's tests.  He said he'll call if anything's different, so I don't expect that.  I like this guy.  He seems more patient and gives us his time, which is so important in any doctor let alone a pediatric cardiologist.

I asked him to reexplain his heart defect since it's been nearly 15 years since I've had that and I wanted Cole to hear it so he begins to understand his own health.  He will have to start taking control, so he needs to have a beginning to understanding the complexity.  It was nice that he explained how a normal heart functions and then showed him how his heart worked before surgery and now.  He explained how his patch that replaced what may have existed of a pulmonary valve is not perfect and is now not closing after the blood pushes through and it regurgitates back down into the right ventricle. The right ventricle, in turn, is filling up with both that blood and the blood that comes in after circulation through the body causing it to enlarge.  At some point, his ventricle will get tot he point it can only do so much more and that is when he will go into failure.  But, they have to catch it before the enlargement causes his right ventricle (muscle) to stretch so much that it cannot perform it's job anymore because it's stretched out so-to-speak.  It's tissue can't 'remember' at a certain point and won't pump like it's supposed to if it becomes too damaged.  Fine line.

He always seems so shocked when he asks the standard, yearly, questions of "does your heart feel funny, feel like it's skipping, thumping out of your chest or racing?", "Do you feel abnormally tired or out of breath?".  Cole always says no and it's this look of disbelief.  He told me that we're fortunate to be on year 15 of a this repair.  We already knew that though.  We know the time is very limited now.  I did ask if he can continue with wrestling off-season and next year and if he can try to get his life guard certification and he said it was all fine.  But, if he has any of those symptoms just once it's over and he's done.  I know the time is getting very limited for Cole's valve and it's very necessary replacement, but we know it's coming we know it's eventual and we know we won't get by without it.  Until then, he'll keep enjoying his life.  And the doc is always so great to tell us how great of care he's getting to be doing this well this long.  I'd like to take credit, but I think God's just been taking care of him this whole time.  For all of this we're thankful.

I probably will no longer post after his cardiology appointments to say another year because we no longer know.  We're running into borrowed time, so we will do what we did in the beginning, when he was a baby.  We'll take a day at a time and enjoy whatever until we're told otherwise.  Here's to a healthy heart.

Yummmmm!!

Made one of the best meals today.  Put some chicken in a saucepan with onions.  Put that in a bowl with a can of tomato sauce, chili season, cumin and garlic.  Then I mixed in copped zucchini and apples.  I mixed refried beans with chipolte sauce in another bowl; and a little taco sauce.  I had two 9x13 pans and spread the refried bean mixture on the bottom of each.  Then I dumped some of the meat mixture on that.  Layer with some tortilla shells.  Then a layer of cheese and another layer of tortilla shells.  Then you layer the last of the meat mixture and more cheese.  Then a last layer of tortilla shells and cheese on top.  Bake that at 350 degrees for about 10 minutes.  Then top with chopped tomatoes and lettuce.  Bake about 5 more minutes and eat.

Goes even better with strawberry shakes.  We had a healthy meal with veggies, fruit and everything all rolled into one and it was super easy and really yummy.  And it true Lisa fashion I started with one recipe and then mixed in pieces of another I'd seen and threw in some things I just thought sounded good.  As usual my taste bids didn't let me down.

Precious Sleep

While I absolutely adore a snuggle with my little man, after just under 3 years I really need a night's sleep.  No interruptions.  Finally something seems to be clicking.  I've offered candy, etc. as bribes a million times and he politely lets me know that he'd rather sleep with me than have whatever he wants.  I am what he wants.  That feels good and all, but I really need sleep.  Last week I told him I was going to lock him out and he said okay when I was tucking him in his bed.  I locked him out and, of course, he tried to come in to snuggle and couldn't get in.  He went back to his room screaming for me.  I went in and sat on his bed and got him calmed.  I turned on his Korean children's songs (I finally got him to listen to music to help him sleep and that has helped) and sat back on his bed with him to snuggle for a minute.  I told him him to look at the window.  I told him that when it was dark it was time to sleep and that I would only be across the hall in my room and I will never leave him because I love him so much.  I then told him that when the sun comes up and there's light in the window it was time to come snuggle with mom or get up and play. 

Who would have known that I would get 4 nights of sleep after that.  It's been wonderful.  One night he actually stayed in his bed all night.  The other nights he came in and I would just tell him his window was still dark and he quietly went back to his bed for the night.  One night he must have planned to sleep on my floor as usual because when I got up the quilt from the living room (that I use as his pallet) was lying on the floor.  I asked him tonight, before putting him in bed, when he should get out of bed and he happily said "when sun comes up".

He's been in such a good mood getting a good sleep and I have too, it's been great.  It may not last forever, but for whatever reason, for now, it's working to just logically talk to him and reason with him. I know.  What 3 year old is reasonable.  Apparently mine.  He's such a sweetheart!!

What to do, what to do

Such a quandary my son is in.  He has the 'chore' of coming up with something he would like to have or do.  Of course, I'm sure there is a monetary limit, so it's not the sky's the limit, but it's still a great opportunity.  As much as it is just that, it's sort of hard for him.  Think about it.  You can come up with one thing you really want to do?  Anything?  He's started a list and I've asked him to come up with a family thing too in case they ask him too.  It seems most kids' wishes include their families in some way.  He's got time, but he still needs to come up with some real ideas...which is so much harder than you think for a 14 year old.

What am I talking about?  Cole got approved for Make a Wish Foundation and the Make a Wish wish granters will be visiting us in a few weeks to talk with him and us about his ideas and to give us some ideas.  My understanding, after that, is that they go off and come up with a way to make a dream come true for him and they come back when it's all set up and the doctor gives him a physical okay (for health reasons).

I got the voicemail today from Make a Wish that his cardiologist had approved him.  I just always thought this was for terminally ill children, but if you actually read their web site, it's for kids with 'life threatening diseases'.  They throw them into different categories within that category and if their condition is 'progressive' they can be approved.

I was completely shocked to find out, but so happy for Cole.  He's had many years of being told no to so much when he felt well enough to do it, for his own protection.  He gets to be special for this now and have some sort of special experience or get something special.  I don't know what it will be in the end.  I don't know what he'll narrow it down to or what they grant.  It will be another surprise and very possibly still in 2012.  So make fun of me, 'cause yeah I cried when I heard the message.  Cole, the otherhand, was very matter of fact when I told him, but he said it will feel more real when there's  a wish.  I get that too.  He's a guy. 

The season has come to an end

Cole is done wrestling.  He definitely gave it his all and if he'd had one more win he would have made it to the final 4 for the district. But, then again he was up against a sophomore with a lot of experience.  The other 3 were the top ranked in the state.  Tough challenge.  He did well and we're so proud of him.  He wants to continue on with conditioning with one of the coaches until next season, which is his choice, but good for him.  Next year will be better, I know it.  To celebrate I bought him some nice, fattening, ice cream since he's had to watch his weight for last few months.  Hopefully the cardiologist will have good news for us in two weeks.  This will be the very first time he's competed in any sport and worked out regularly, so I can't help but wonder if or how it might affect his heart.

        Cole, I love you and I'm so proud of you.

And from his first black eye, earlier in the season.

On their own time.

This is what happens when little girls want to try out their camera.  They take goofy pictures....and these are only a few of about 80 I took off her camera.  There were a multitude of picture of each stuffed animal by themselves as well as books.