Finally February

While January wasn't awful, it just felt like it drug on forever.  I'm hoping February's a little better.  We seem to have gotten most of the bugs out of the house.  Everyone seems to be feeling better, though Cole still has a cough that real dry and hacky.  Of course, I always have a worry in the back of my head for his heart and that it's not the one symptom of failure.  Gotta trust the doctors though.

Jaemin's passport came in last week.  It only took 3 weeks from the day we went to the post office and we didn't get a request for any additional documentation.  YAY!

We're beginning week two of Cole's required 1 hour study nights.  There haven't been any grades entered, so we can't tell if it's going to help him or not.  Can't hurt, right?  It's not like his grades are really bad, just not as good as I know he's capable of.  I'm hoping to see what he can really do.  Then, we'll decide when he can go get his license after he turns 16. 

Otherwise, all is well.  I really love the boring life.  It means life is good.

When you feel that urge

to tell someone good job or thank you, do it!  It's so easy to forget about it and dismiss it...I do it a lot.  I just get busy and don't follow through with my thoughts and good intentions.

Tonight, I did and it made a difference.

I had just told my mom about some things that our middle school was doing and has been doing that makes things easier for the kids and parents.  I thought for once I'd email to let them know.  So even though I'm pretty sure our superintendent doesn't like me because of our previous engagements, I cc'd him because I thought he should also be aware.

Shortly after I emailed her (the principal) to thank her and the teachers, I got an email back saying that I had made her day.  She told me how bad the day had been and that she was questioning some things until she read my email and it was just what she needed.

What we do so impacts someone else.  When we're grouchy and lash out we set others on a course for being grouchy and upset for the day.  It passes on throughout everyone we and they intersect.  But, when we make someone's day and make them happy, they can pass that on instead.  I think we could all use that and I don't do it near enough.

A tooth gone, but replaced

Yep, already replaced and she just lost her very first tooth.  I ALWAYS take a picture of their very first lost tooth.  Usually you will see this nice black gap in their mouth.  No, not Chelsi.  That permanent tooth has been coming in since October and the baby tooth finally came out, but the permanent tooth is already fully in.  Still exciting.  She lost her first tooth.  Bad news is that the top one is still not out and it's permanent has been in since October too.  AND, a second permanent tooth is getting ready to come in on the bottom too.  Apparently, her permanent teeth have suddenly gotten in a hurry and baby teeth just don't want to let go.

So cute!

Jaemin is doing better with speech class.  He's been in it for a full year and is approved for another year of his IEP.  His teacher has helped us to understand him so much better.  He still gets hung up and can be hard to understand, so when he gets out a whole understandable sentence it is a big deal.

Last night I went to check on Jaemin in bed.  He was very still and quiet, so I thought he may be sleeping.  Sometimes though, he's just being quiet and still.  Those times he'll quietly reach out his arm because he wants a hug before I go.  Last night was no different, but he said something.  I couldn't understand him because he was whispering.  I had grabbed his hand instead of hugging him and asked him again what he said.  He said 'nice to meet you'.  I don't where he got that from, but it was pretty darn cute!

Make a Wish

I haven't heard back that everything's a go, but I can't imagine it is.  His wish is pretty darn simple.

We tried and tried to think of something else and couldn't, so Cole is sticking with his wish to go on a shopping spree.  He doesn't really want to stick with one store, etc., etc. so we got his questions squared away with Make a Wish.  For instance, he was thinking he could buy his hunting rifle, but no firearms, etc. are allowed.  He has now decided he wants to shop at Bass Pro and Walmart.  He wants his own laptop instead of the 6 year old Toshiba he shares with the other kids, so now I think he's pretty content with his wish.  It will just be a day trip, so nothing terrible expensive for Make a Wish considering our family size.

I hope it really is special for him.  Hopefully, we'll hear something soon that it's at least fully approved this time.  We did tell them to change the dates so we can do it after our Korea trip.

And the price is right....enough

Not really, but what are you going to do.  I was hoping Brian's brace for his leg would be closer to $300, but it was $470 out of pocket.  Brian started to tell the lady we would think about it and I motioned for him to say yes.  He needs it.  It would really do him some good.  I think it's worth it.  We would do it for the kids any day, so why shouldn't he?

Pretty soon, his walk will get much prettier.  Luckily, he hasn't worn his newer tennis shoes much at all.  She said he shouldn't wear any of his older ones with it because they'll have a wear pattern and the brace won't work as well. 

5 years later

I went with Brian to an appointment Friday.  I finally talked him into at least seeing what they can do for him with an orthotic/prosthesis.  Tomorrow is 5 years since his accident.  It seems like yesterday until I realize that it really has been 5 whole years.  The lady at the DME (durable medical equipment) was really shocked at how well he was doing.  She was trying to help him put on the brace she wanted him to try and she said well you know how these work from therapy, right?  He then told her he was completely paralyzed at one time and by the time his legs worked his hands still did not.  The therapist always had to do everything for him.

So, he tried on the ground reaction brace, made with the same material prosthetic feet are made for runners who are amputees and it was shocking.  I actually started to cry, though I shut it off as quick as a could.  I knew it would embarrass him, but I really couldn't help it.  She asked me to watch Brian walk up and down the hall with it on and he almost had no gait difference.  I mean it was different, but his leg to leg gait wasn't so different anymore.  He wasn't swinging his leg out so far to keep his toes from dragging along.  It just looked more fluid.  She said this is why these braces are so helpful.  When your nerves that do work tell your brain it doesn't have to work so hard to pick everything up and swing your feet out, you can walk with more ease and not get so tired.  Amazing, a little piece of metal that goes just below your knee and down and around your foot. 

She sent us off saying they would contact my insurance and get everything squared away and let us know this week how much it will be since I'm in the high deductible plan.  Trust me, well worth it. 
I asked him if he saw himself wearing it and at first he said not in shorts, but then, he said maybe.  He, in his mind, still sees himself the way he walked for 33 years of his life.  He has no idea that it's not the brace that will draw attention or draw new attention anyways.  He starting to walk moreso with a limp that people do see.  And he won't have to be so tired trying so hard to cover it up by trying really hard to walk as normal as he can.  It's not admitting defeat, it's just moving on.

I can't wait 'til we get it.  A girl at work's son has it for CP and she says it's the least expensive of the braces since it doesn't have to be casted to your body, so I'm hoping around $300, but I may be really shocked.  Either way, if it makes things better, it's so worth it.  I just can't believe how much our lives have changed in the last 5 years.