So, yesterday I had to go get retested so that they could reevaluate my serums for my shots. Out of 39 tests they found about 6 that I was less sensitive to. So those will be ramped up in my serum hoping to make things better for me. However, the others all stayed the same and a couple actually got worse. The major ones were, of course, mold and dust that you can't escape. HUGE welts on my arm. The nurse and nurse practitioner taking care of me couldn't believe how bad my allergies still are. I preface this by saying I've already done 8 years of shots with another doctor. He told me he had done all he could for me and few years later when I wok up gasping for air this doctor says he can make a difference.
The nurse said there are only a couple of things I'm NOT allergic to. She asked if I knew I was allergic to cats. Uh kinda. I had one hair that flew onto my neck a couple of years ago and I almost scratched it raw. She offered me some steroid shots every 3 months to help me breath, but I'm pretty much used to the way it is and don't need more crap in my body. I'll just stay on what I'm on and not add to it and deal.
Hey, a little progress is a little and maybe someday I'll be able to do with less.
Lisa
Wednesday, March 24, 2010
Sunday, March 21, 2010
Gotcha Days All Around
Friday was Kaelin's Gotcha Day (aka the day she came to us). Monday is Chelsi's Gotcha Day. These two days in March make March what it is....great...even when it's not so great. Usually, I find myself thinking about certain days, regardless of where I am, physically, that particular day. I find myself reminiscing about their calls on March 15 and March 17th, respectively. Or should I say Kaelin's email travel call, because I was on the internet whining about my baby coming home and they couldn't reach me. This was back in the day of no DSL you know.
Kaelin has now been home with us for 7 years and Chelsi will be with us 4 years tomorrow. Ahhh...what would our lives be like without them. Definitely, not as stressful, but mostly, not as rich, wonderful, entertaining, beautiful and special. We gained a special love from them and they gave us this gift. They were our gift.
We love you girls!
Love mom and dad.
Kaelin has now been home with us for 7 years and Chelsi will be with us 4 years tomorrow. Ahhh...what would our lives be like without them. Definitely, not as stressful, but mostly, not as rich, wonderful, entertaining, beautiful and special. We gained a special love from them and they gave us this gift. They were our gift.
We love you girls!
Love mom and dad.
Thursday, March 18, 2010
What a busy week!
One more day to go and about 1/2 way through today I just felt exhausted. I've been working extra time to finish a work project and it's been serving to make up time off for all of my medical appointments lately.
I did find out that I'm fine and don't need surgery other than to remove my skin cancer. That's next week and once it's done it's done. Not much to really worry about. I was pretty ticked when I saw the surgeon about the so-call fibroadenoma. Not at her; I was mad at the staff and radiology department of the hospital who stink at communication. First the surgeon walk in and tells me to tell her about the discharge. Uh, um, what? I said "who said that?" She tells me I did in September with my first ultrasound. I told her I had, in fact, never mentioned this because it's never happened. She promptly removed it from my erecords. Then, I told her that they told me they referred me because the radiologist thought it was a fibroadenoma and he didn't want to biopsy it. Well, apparently, this wasn't true either. She said they still thought it was a good possibility it was just a sebaceous cyst as diagnosed 3 years ago. Uh, maybe they should keep the patient in on that loop and I wouldn't have worried at all! So she takes a look and tells me she feels that's exactly what it is and these cannot be biopsied as my is to attached to my skin and superficial. She must have really been in the mood to cut though, 'cause she quickly told me she could take it off right then and there. I told her since she was SO sure of what it was and that there was pretty much no chance it was cancer and it wasn't bothering me I don't really want cut. So, I walked out with no surgery appointment and no cuts. YAY!
All I have left is my yearly allergy testing and my skin removal next week. Easy breezy!
We haven't gotten to read (the girls and with Junie B) last night or tonight. Last night was CCD and tonight was gymnastics and parent/teacher...at the same time, of course. So, Cole stayed home, Brian took the two middles and I took the two littles and we went our separate ways. The girls were not happy that there was no time for Junie B, but geesh, momma needed some rest. Jaemin had a great time watching gymnastics. More he was trying to get the other parents' attention and then he'd run away if anyone looked like they may touch him. Mommy needs to protect him if they get too close ya know. We were walking out to the car after gymnastics and Chelsi tells me she wants to go more. One day a week isn't enough. She says gymnastics are great because the whole time she gets to do all her favorite things every time. :) I think she found her niche!
I will probably not work after work overtime tomorrow, but am hoping to get in early so I can leave early and take little man (my bubby) to the doctor. He's probably not too bad anymore, but I'm tired of realizing that he gets worse on the weekends. He had that sinus infection, 2 weeks ago, back up into his eyes with a really low grade fever and the fever came back one night last week, but we're still having to do eye drops every few days because it's still coming out. We're just going to have him checked out. 2 weeks is long enough for him to muck with this. He's obviously not feeling too bad though. No fever and great moods!
Have a good night.
Lisa
I did find out that I'm fine and don't need surgery other than to remove my skin cancer. That's next week and once it's done it's done. Not much to really worry about. I was pretty ticked when I saw the surgeon about the so-call fibroadenoma. Not at her; I was mad at the staff and radiology department of the hospital who stink at communication. First the surgeon walk in and tells me to tell her about the discharge. Uh, um, what? I said "who said that?" She tells me I did in September with my first ultrasound. I told her I had, in fact, never mentioned this because it's never happened. She promptly removed it from my erecords. Then, I told her that they told me they referred me because the radiologist thought it was a fibroadenoma and he didn't want to biopsy it. Well, apparently, this wasn't true either. She said they still thought it was a good possibility it was just a sebaceous cyst as diagnosed 3 years ago. Uh, maybe they should keep the patient in on that loop and I wouldn't have worried at all! So she takes a look and tells me she feels that's exactly what it is and these cannot be biopsied as my is to attached to my skin and superficial. She must have really been in the mood to cut though, 'cause she quickly told me she could take it off right then and there. I told her since she was SO sure of what it was and that there was pretty much no chance it was cancer and it wasn't bothering me I don't really want cut. So, I walked out with no surgery appointment and no cuts. YAY!
All I have left is my yearly allergy testing and my skin removal next week. Easy breezy!
We haven't gotten to read (the girls and with Junie B) last night or tonight. Last night was CCD and tonight was gymnastics and parent/teacher...at the same time, of course. So, Cole stayed home, Brian took the two middles and I took the two littles and we went our separate ways. The girls were not happy that there was no time for Junie B, but geesh, momma needed some rest. Jaemin had a great time watching gymnastics. More he was trying to get the other parents' attention and then he'd run away if anyone looked like they may touch him. Mommy needs to protect him if they get too close ya know. We were walking out to the car after gymnastics and Chelsi tells me she wants to go more. One day a week isn't enough. She says gymnastics are great because the whole time she gets to do all her favorite things every time. :) I think she found her niche!
I will probably not work after work overtime tomorrow, but am hoping to get in early so I can leave early and take little man (my bubby) to the doctor. He's probably not too bad anymore, but I'm tired of realizing that he gets worse on the weekends. He had that sinus infection, 2 weeks ago, back up into his eyes with a really low grade fever and the fever came back one night last week, but we're still having to do eye drops every few days because it's still coming out. We're just going to have him checked out. 2 weeks is long enough for him to muck with this. He's obviously not feeling too bad though. No fever and great moods!
Have a good night.
Lisa
Monday, March 15, 2010
Love this face
I'm not sure what he was attempting to do, but he managed to raise an eyebrow doing it. He's so funny with his faces now.
We read and read and read
Chelsi LOVES to read. She's been reading since she was about 3 or 3 1/2. She caught on very quickly to sight words and I don't think any of us really taught her how to sound words out phonetically, but she probably overheard us working with Kaelin. She reads very well at 4 1/2. At her grandma's daycare there are 5 year olds getting ready for kindergarten, so she does generally go through sight words with all the kids...why not, right?
After they grasp her sight words she sends home these Dick and Jane type readers. I decided last night that she could probably read more and since she loves reading so much, I didn't think it would hurt. I asked Kaelin to go find one of her chapter books, so she brought back a Junie B Jones book. Mind you these are 1st through 3rd grade readers. The girls sat by me and they took turns reading a page. They both stumbled on words, but different words. Chelsi has more trouble with the larger words....the words I would expect her to at her age...even older. Kaelin stumbles on small words because the rules don't make sense to her. I can tell she can sound out anything that follows the English rules, but if it doesn't she's lost. And Kaelin doesn't memorize. Chelsi has an awesome memory, so once I tell her a word, she's got it.
Literally, Chelsi foddered over 4-6 words tops in 4 pages. That is great for a 1st grader, let alone a child who doesn't go to school until mid 2011. Kaelin got done reading her portion tonight and I had her log her reading for school. Chelsi was not happy we were done. She wanted to keep reading.
She actually cries and whines a lot begging for someone to listen to her read. She loves to read and she knows she's good at it. This is a good thing right? I mean no one is pushing her. She pushes herself. She wants it. She tells us that she wants to be smart and she knows reading will make her smart.
Brian's already worried about giftedness. I'm not worrying about it until the day comes.
Lisa
After they grasp her sight words she sends home these Dick and Jane type readers. I decided last night that she could probably read more and since she loves reading so much, I didn't think it would hurt. I asked Kaelin to go find one of her chapter books, so she brought back a Junie B Jones book. Mind you these are 1st through 3rd grade readers. The girls sat by me and they took turns reading a page. They both stumbled on words, but different words. Chelsi has more trouble with the larger words....the words I would expect her to at her age...even older. Kaelin stumbles on small words because the rules don't make sense to her. I can tell she can sound out anything that follows the English rules, but if it doesn't she's lost. And Kaelin doesn't memorize. Chelsi has an awesome memory, so once I tell her a word, she's got it.
Literally, Chelsi foddered over 4-6 words tops in 4 pages. That is great for a 1st grader, let alone a child who doesn't go to school until mid 2011. Kaelin got done reading her portion tonight and I had her log her reading for school. Chelsi was not happy we were done. She wanted to keep reading.
She actually cries and whines a lot begging for someone to listen to her read. She loves to read and she knows she's good at it. This is a good thing right? I mean no one is pushing her. She pushes herself. She wants it. She tells us that she wants to be smart and she knows reading will make her smart.
Brian's already worried about giftedness. I'm not worrying about it until the day comes.
Lisa
1/2 down 1 1/2 to go
I don't know how else to count my medical visits.
I got my stitches out of my back and I got my pathology back. There are basically 3 categories of basal cell carcinoma and my back consisted of 2. I had superficial, which is really good and early nodular, which is second best, but good that it was early. I probably would have been a lot more disfiguring had it been further in nodular. The next worse is still not necessarily fatal, but it reaches out more on your skin and is more likely to disfigure your body.
I have my breast appointment in a couple of days and Dr. G said that if the surgeon wants to take off the skin cancer when/if she removes the lump she can. This is why she gave me the report....to give to my surgeon. If I don't get it done by her than I have to go back in two weeks to have surgery to have it removed. So, basically, I still don't know a whole lot more and won't until mid-week, but I sure walked out of that office feeling a whole lot better.
One body are down, one more to go.
Lisa
I got my stitches out of my back and I got my pathology back. There are basically 3 categories of basal cell carcinoma and my back consisted of 2. I had superficial, which is really good and early nodular, which is second best, but good that it was early. I probably would have been a lot more disfiguring had it been further in nodular. The next worse is still not necessarily fatal, but it reaches out more on your skin and is more likely to disfigure your body.
I have my breast appointment in a couple of days and Dr. G said that if the surgeon wants to take off the skin cancer when/if she removes the lump she can. This is why she gave me the report....to give to my surgeon. If I don't get it done by her than I have to go back in two weeks to have surgery to have it removed. So, basically, I still don't know a whole lot more and won't until mid-week, but I sure walked out of that office feeling a whole lot better.
One body are down, one more to go.
Lisa
Saturday, March 13, 2010
Because writing is therapeutic
and it has helped me in the past to go back through my own personal diary, here, and see what we have gotten through.
I'm just a little stressed right now. I know that after March passes and my surgeries are done....hopefully, I can just erase it all from my mind and go on. Hopefully is for the surgeries or whatever to be done by the end of March...I will have no trouble erasing it from my mind.
So I had my two spots biopsied and one is a blue nevus as I thought and the other was basal cell as I wondered. I already got the stitch (yes just 1) out of my head and I go back Monday for the two stitches in my back. Apparently, your back has to stay in longer than your head... I don't know why, so don't ask. After that I get a nice and lovely consult with a general surgeon for the lump in my breast. I posted back in September after I had to get an oh so enjoyable mammogram just because I hit 35, but because I also had a sebaceous cyst they wanted an ultrasound too. It came back with matter in it slightly off from what they usually see for this type of cyst, so they told me not to worry and get a follow up U/S in 6 months. That was this week and when I called to see if they had order my doc was right on top of it and they were ready to go.
It didn't take long to get it done, but she left the room and came back and said the radiologist wanted to biopsy it because it had grown more than they expected in 6 months and was still not quite right. So, of course, I cried a little since the day before I had just been told I had skin cancer...minor yes, but too much for me for one week. I got the appointment all worked out and yesterday was feeling much more assured and ready to get it over with. Well, they changed their minds and this time my doctor called to let me know the radiologist read the U/S and refused a biopsy. He said it needed excised. So the doctor sent the orders to a general surgeon and they had an appointment ready for me. I was in pretty good tears by then. I called the surgeon to find out what to expect and actually found out it was just a consult and they still may biopsy it and basically ignore what the radiologist said depending on what she thinks of my two U/Ss. So, my sweet husband ran around town getting my U/Ss and mammograms that the hospital burned to a CD and brought it to my surgeons office for me. By Wednesday morning she should have had plenty of time to look at the visuals and a good idea of what she wants to do with me.
They did tell me the radiologist is calling it a fibroadenoma for now. It can be a precursor to breast cancer, but is most often completely benign. From what I could gather they leave them in if their smaller than a certain size, but mine it larger. I don't have a clue what she's going to decide, but if they remove it I'm a bit more nervous. All I can imagine is a hole where it used to be. They assure me they will pull in a cosmetic surgeon if they need to, but really they can just move my existing stuff around. Uh....what stuff? Do they have any idea how small I am??? So don't take away what little I have or I'm gonna be a little ticked.
I'm pretty much done with all my tears now, though the rare possibilities out of both of these spots still do bother me and make me fearful from time-to-time, you can't live your life in perpetual fear. I choose not to. I choose to hug my kids even more and love my husband even more and live for the day and maybe learn something from this experience. Hoping it's a very short-lived experience, of course.
So, if you wanna pray for a good consult Wednesday, I'd appreciate it. I know God is listening and I know everything will be okay, but extra prayers never hurt anything. I'm okay with my other small surgery of getting my basal cell removed. I have to wait until the biopsied spot heals before they'll do that one, but I don't know what she'll do now that I'm dealing with another part of my body on the other side? This adenoma bugs me a little more.
Lisa
I'm just a little stressed right now. I know that after March passes and my surgeries are done....hopefully, I can just erase it all from my mind and go on. Hopefully is for the surgeries or whatever to be done by the end of March...I will have no trouble erasing it from my mind.
So I had my two spots biopsied and one is a blue nevus as I thought and the other was basal cell as I wondered. I already got the stitch (yes just 1) out of my head and I go back Monday for the two stitches in my back. Apparently, your back has to stay in longer than your head... I don't know why, so don't ask. After that I get a nice and lovely consult with a general surgeon for the lump in my breast. I posted back in September after I had to get an oh so enjoyable mammogram just because I hit 35, but because I also had a sebaceous cyst they wanted an ultrasound too. It came back with matter in it slightly off from what they usually see for this type of cyst, so they told me not to worry and get a follow up U/S in 6 months. That was this week and when I called to see if they had order my doc was right on top of it and they were ready to go.
It didn't take long to get it done, but she left the room and came back and said the radiologist wanted to biopsy it because it had grown more than they expected in 6 months and was still not quite right. So, of course, I cried a little since the day before I had just been told I had skin cancer...minor yes, but too much for me for one week. I got the appointment all worked out and yesterday was feeling much more assured and ready to get it over with. Well, they changed their minds and this time my doctor called to let me know the radiologist read the U/S and refused a biopsy. He said it needed excised. So the doctor sent the orders to a general surgeon and they had an appointment ready for me. I was in pretty good tears by then. I called the surgeon to find out what to expect and actually found out it was just a consult and they still may biopsy it and basically ignore what the radiologist said depending on what she thinks of my two U/Ss. So, my sweet husband ran around town getting my U/Ss and mammograms that the hospital burned to a CD and brought it to my surgeons office for me. By Wednesday morning she should have had plenty of time to look at the visuals and a good idea of what she wants to do with me.
They did tell me the radiologist is calling it a fibroadenoma for now. It can be a precursor to breast cancer, but is most often completely benign. From what I could gather they leave them in if their smaller than a certain size, but mine it larger. I don't have a clue what she's going to decide, but if they remove it I'm a bit more nervous. All I can imagine is a hole where it used to be. They assure me they will pull in a cosmetic surgeon if they need to, but really they can just move my existing stuff around. Uh....what stuff? Do they have any idea how small I am??? So don't take away what little I have or I'm gonna be a little ticked.
I'm pretty much done with all my tears now, though the rare possibilities out of both of these spots still do bother me and make me fearful from time-to-time, you can't live your life in perpetual fear. I choose not to. I choose to hug my kids even more and love my husband even more and live for the day and maybe learn something from this experience. Hoping it's a very short-lived experience, of course.
So, if you wanna pray for a good consult Wednesday, I'd appreciate it. I know God is listening and I know everything will be okay, but extra prayers never hurt anything. I'm okay with my other small surgery of getting my basal cell removed. I have to wait until the biopsied spot heals before they'll do that one, but I don't know what she'll do now that I'm dealing with another part of my body on the other side? This adenoma bugs me a little more.
Lisa
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