I'm going to find a spot on the blog to list this site; www.christopherreeve.org.
For the most part, Brian's spinal cord injury is just something that happened to him and, of course, our whole family. Most people assume that because he walked again and regained some of his other motor functions everything just goes back to the way it was, a sort of normal, for our family. But, any SCI patient or family knows that's not really true. It's something the patient will live with for the rest of their lives and it's not a static state. Meaning just because they gain it back doesn't mean it's permanent. Brian has lost some very minor simple functions. Mostly we noticed the right end fingers. But, over time things can happen within the spinal cord because of the injury that can cause him to lose more of what he gained back those months after and in rehab.
I won't get all technical here, but I've known for some time that he, in all reality, will likely end up disabled in 10-20 years. At our age now, that's pretty young. I say disabled only because the job he is trained to do cannot be done if he loses function. Thankfully, I think he may be able to find something to do at his current employer, just not what he does now, if he ends up with a walker or wheelchair. Honestly, I tend NOT to think about this. It makes me a bit sad at our lives changing once again. But, I do know it could happen and keep it purged away so that the shock doesn't hit me like his accident did.
Anyways, this site is a great site with lots of great information on spinal cord injuries.
Lisa
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