After some tears and anxiety we have the date set

He had picked the day a few days ago.  We worked with the 2 weeks in March the cardiac nurse gave to us.  I called and left her a voicemail, but she never called back.  So, then, I called and she said the doctor (there are two cardiac surgeons) she was planning on may be on Spring break that week.  Uhhhh....why did you give us the choice then?  She said she would call back later that day or the next day.  Me, thinking by the same time the next day was growing inpatient by Friday.  I had to leave work at 12:45 to get Jaemin to kindergarten screening by 1:30.  Needless to say, I knew I couldn't talk to her in the middle of his screening at the busy elementary school, so I called to ask before I left.  Well, the receptionist decided I really needed to be stressed out and she asked how she could help me.  When I let her know I just needed to find out if we were getting the date or not she told me the nurse was wrong and the doctor would not do his surgery that day.  I told her that that day worked out perfectly and I needed to know for sure before they moved it up an entire week and I only had 1 week to prepare, at home, work, etc. plus figure out what to do with the kids because Cole specifically picked a day the kids would have no school to work around.  She couldn't seem to understand what I could possibly need to do before his surgery with 5 kids to think about.

The nurse called shortly after and I explained to her that the weekend was here, we only had 2 weeks left to plan, I had almost no minutes left on my prepaid phone to keep calling to get this arranged and get my questions asked.  I explained that I just needed to know.  She was NOT very nice to me.  I won't go into exactly how she talked to me, but needless to say I ended the conversation with "I'm at work and can't deal with this right now, by the time you call this afternoon at home I will have talked to Cole and maybe we'll get a 2nd opinion at the neighboring children's hospital".  I was starting to cry from the frustration and stress and didn't want that at work.  She called back and left me a voicemail to apologize for how she spoke to me and said she would call after kindergarten screening.

I walked in the door after getting the kids, after screening, and one of the surgeons called.  He said he just wanted to make sure we weren't stressed about the date because the idea of this surgery is stressful enough on a family.  He assured me one of the two would be there that day and he would be set to have surgery.  He said in addition, to alleviate some financial stress (yep, the out of pocket max on our insurance is high deductible, so that is high too) by paying for our hospital night since we have to come the afternoon before to meet and run tests.  He said the nurse would be calling that night.

She called last night after we ran for groceries and apologized again.  She told me they knew their job and sometimes forget all of the planning a family has to do prior to surgery (especially for 7) and how stressful it is.  She told me they would get us the hotel room and maybe even a 2nd night so Brian wouldn't have to leave so late.  We're hoping to stay a 3rd night (on our own dime) so that if he gets moved to step-down by that Sunday the kids can see him before they leave.  They, more than likely, will not be allowed in ICU, so one of us will just keep them busy at the hotel until they can see him, unless they say it isn't going to happen.  I think it would make Chelsi and Jaemin feel better for sure.

The worst part will be 5-10 days of hospital food and the expense of it.  Luckily, she said they have a fridge and I can bring some snacks and food with me and I can get by on little.  He'll be well fed since he's the patient.  I felt so much better when she gave us the date for sure and we could move forward with the next step of planning.  With this kind of thing and this many people and a hospital far away, it takes a fair amount of planning in steps.  It's not like it's an outpatient surgery and he'll be out in a day or back to school in just a few days, this is 3 weeks away from work and school with the possibility of only returning part time until he gets his energy level and tolerance built back up.  I have no doubt he'll do well and luckily he's very strong and very healthy, but open heart surgery is tough on the body and stressful on a heart.

Soon enough, like all of the other things in our lives, we'll be able to look back and just smile at the memory of it.  And while he'll have a lifetime of these, the kids will be older and we'll be more seasoned at it as will he.  And, hopefully, there will be advances to lessen the number of open-heart surgeries and allow for some cath procedures here and there instead.